"The Hard and Soft Palate, commonly called the roof of the mouth are important to articulation. The hard palate in front is made of bone, while the soft palate in back is made of muscles. At the back of the soft palate is the uvula, which is a tiny "punching bag" of flesh." (www.yorku.ca/earmstro/
This first picture is of my palate, or lack thereof, and below it is a "normal" palate. The doctor said he won't repair my hard palate until I'm 6 or 7, right before I get my permanent teeth and that will involve bone grafting or marrow injection or something like that. We'll worry about that when the time comes.
I will probably be in the hospital for 2 days, then I'll be on a liquid diet for a looooong time. Mommy asked the doctor about jello and the reply was, "It's not liquid". Yikes!
OK, now on to more pleasant things! I have a new sandbox!!! YEAH!
One of the professors at the college gave me this sandbox.
At first I wasn't too sure about that white stuff in it, but...
...Once I let the sand fly I realized this was going to be LOADS of FUN!
A couple days later Daddy bought more sand.
I was pretty confident that he wasn't going to bury me in it.
Great fun.
Aaaaaand, my high chair is now in the basement
and I have graduated to a REAL chair with a booster seat.
I'm getting to be such a big boy.
Thank you all so much for praying for me as I go through the surgery and recovery process. And pray for my Mommy & Daddy too.
A note from my Mom: While you are praying for Guille, would you please pray for my cousins' families:
Blaine, Darcy & Connor: Darcy was diagnosed with leukemia about a month ago. She went through the first round of chemo pretty well and was hoping that had kicked it. But, the bone marrow scan showed that it had not been effective, so now she starts a new round of treatment and will need to be in a hospital quite a ways from home for 4 - 12 weeks.
Blaine's sister, Lisa's husband was diagnosed with ALS (Lou Gehrig's disease) 2 years ago and that disease is progressing more rapidly than any of us had hoped. They had two children who are quite fond of their dad, so this is hard for them.
Thanks for your prayers, thoughts and love. We appreciate and love you all so much. I'll try to update from the hospital whenever I can.
I am prayin for him, as well as the rest of my dorm Love that little dude, they all think he is adorable
ReplyDeleteFrom Craig and Shar,
ReplyDeleteLuke had his surgery at the end of June and is healing well. You are right the feeding can be a struggle. Luke figured out pretty quickly what is was okay for him to eat, though he longed for "real food." Here are a few things we learned through the process. Cold liquids hurt his healing palate. He wouldn't drink anything the first couple of days until we figured out that if we warmed them briefly in the microwave, he would guzzle them down. Carnation Instant Breakfast may be your best friend. Chocolate and Vanilla kept us going. A Starbucks Mango Smoothy double blended with extra protein powder was a life saver more than once. When he just wouldn't eat, he would eat that. Liquid yogurt drinks gave us a change of pace when he was tired of the same old thing. In a couple of weeks when he can start eating baby food you will rejoice, and so will he! May the Lord be with the little guy, and give you strength and wisdom!